This past Saturday, I celebrated another year of conquering my old foe of Duchenne Muscular Dystrophy. We've battled each other for 33 years now and I have no desire to give my formidable opponent an inch anytime soon. It's great to be one of many with DMD who have lived much longer than the medical establishment ever gave us a chance to. Hopefully I'll be thumbing my nose at this disease for many more years to come.
My birthday was pretty laid back and it was a really good day. The highlight of the day was when we went to the newly opened Hooters for dinner. It was a little bit of a zoo since they had only been open a few days but the scenery made up for that :-) Wings, drinks, flat screen TV’s and pretty waitresses. Does it get any better than that? I don’t think so! Seriously though, it was just great being with friends and celebrating the day together.
Sunday was the direct opposite of the fun day we had on Saturday. At about 10:30 in the morning the power went out at our house. It turned out that our neighbor’s son was hauling something down our alley and he took out a few power poles in the process. We were in the two block area that was affected and to make matters worse, the temperature reached a high of 100. It was a long hot afternoon but we survived just fine. The power came back on at 8:30 that night and we were all pretty glad about that.
My second year of college gets underway on Monday and I’m ready to get started. I’ll be taking Contemporary Math, Montana History, History of Rock n’ Roll, and an ethics class this fall. These classes will be pretty interesting I think and I’m happy to be taking my final math class. The only downside to the semester is that I have 10 textbooks and there will be a heavy load of reading. Hopefully most of the reading will be fairly interesting and not too boring.
That’s it for this update but before I sign off I’d like to give a brief summary of the video that leads off this post. Matt Eddy is a vent user from Massachusetts and he’s currently wheeling across the country to raise awareness for Matt’s Place. Matt’s Place is a charity that seeks to provide housing and care options to adults with severe physical disabilities. Matt’s Place wants to give institutionalized adults with disabilities the chance to live in the community and be contributing members of society. If you’d like to learn more about Matt’s Place please take the time to check out the clip. You can also track Matt’s progress by checking out his blog from the road at http://obcrip.livejournal.com/