Thursday, December 01, 2005

Winter/IVUN/Mark S.

The winter season has finally hit North Dakota this week. A combination blizzard & ice storm wreaked havoc on parts of the region. Oh well when you've lived in the northern plains, winter is just something that's taken in stride. The scenery sure is pretty with our first fallen snow and the feeling of the holiday season is in the air.

This week the International Ventilator Users Network put my recent newspaper article on the proposed Medicaid cuts on their website. To view the actual article please visit http://www.post-polio.org/ivun/images/BoatmanArticle.jpg It has been great to get the truth out there on the things that could devastate the lives of the poor and people with disabilities in this country. We must keep fighting and make the politicians accountable for their actions. The time for change is here and my hope is the 2006 election will bring that.

On Monday, I sadly lost a dear friend. My friend Mark Schager lost his strong and brave fight with Duchenne MD at the age of 38. He proved the medical establishment wrong by showing people with Duchenne's are living much longer quality lives. Mark had a great, funny, and intelligent personality that touched my life as well as many others.

Mark thanks for showing many of us with Duchenne's how to live strong and never give up the fight. Peaceful rest my dear friend.

The Nodakwheeler

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